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ACT Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Fibromyalgia Society
Support, information, advocacy, research
Pearce Health Information
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ACT ME/CFS Society

We provide support, information and advocacy for people affected by Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and/or Fibromyalgia Syndrome (FMS) in the Canberra Region.

Support

 

·         Self Help Course – Helping you learn how to manage ME/CFS & FMS more effectively

 

·         Support Worker – Information and Support available from Staff in the SHOUT office

 

·         Telephone Information Support Service (TISS) – speak to a person living with ME/CFS & FMS

 

·         Support groups – Learn about a new topic and meet other people with ME/CFS & FMS

 

Information, advocacy and research

 

·         Society Website – ME/CFS & FMS information and news at www.mecfscanberra.org.au

 

·         Fundraising for AHMF – Premier ME/CFS Research Foundation in Australia www.ahmf.org

 

·         Public Information sessions – such as held in National Science Week 2006

 

·         Specialised information sessions – eg. Education providers, General Practitioners

 

·         Awareness Day Activities (May 12) – Fund raising and information sessions

 

·         ME/CFS Association of Australia – helping create awareness on a national level www.mecfs.org.au

 

Publications (to list a few)

 

·         Canadian Overview Guidelines – Doctors Guidelines for ME/CFS

 

·         ME/CFS/FMS Brochure – general information on ME/CFS & FMS

 

·         Quarterly Journal –including local reports, personal stories, and world wide research

 

·         Service Directory – Brochure of services available to people with ME/CFS/FMS in the ACT

 

·         General Booklets - eg “How to communicate with your doctor” & “Coping with CFS”

 

·         Information Kit for Schools and Young people

 

·         Chameleon Newsletter on CD Rom - includes articles on a variety of relevant topics

 

·         Written material provided from our support group speakers each month

 

·         Library - books related to ME/CFS available to borrow

 

Where are we?

 

The Society is based at the SHOUT (Self Help Organisations United Together) Office in Pearce Community Centre.  For inquiries the SHOUT Office is open from 9.30 am to 5 pm Monday to Friday ph 6290 1984.

 

Who can join the ME/CFS Society?

 

Membership is available to people with ME/CFS/FMS, friends, family, health professionals and any interested parties.  As a member you will receive full access to all of our resources. The current membership is $30  (students, pensioners and Centrelink recipients $20). 

 

www.mecfscanberra.org.au

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